The Sarcoidosis Support Community

A free community focused on Sarcoidosis - its effects, and treatments. Led by Martine with management support from Keith, Deb and Denise.

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Make a Snarky Sarkie Statement ! by buying a t-shirt (Thanks to theGardener!)

Fundamentals

Click here for an index of discussions.

List of Specialist's.

Events

Merseyside & Cheshire Meet-up (SAS) - all welcome

February 16, 2010 from 1:30pm to 5:30pm – Chaloner Hall, rear of St Austins Church
Essex Meet-up (SAS) - all welcome

February 27, 2010 from 3pm to 5pm – Luncies Hall
South Yorkshire Meet-up (SAS) - all welcome

March 4, 2010 from 5:30pm to 9pm – Cafe Bar, Central Travelodge

Latest Activity

Tara Wallace, gurmit singh bhalla and Carolyn Faith joined The Sarcoidosis Support Community

1 hour ago

Deb replied to June's discussion 'Is there anyone in Scotland who is on the Marshall Protocol?'

Hi June, I requested that you become a friend of mine...once you accept we can email each other! Thanks Andrew for sending over those instructions...! Deb

2 hours ago

DEW replied to DEW's discussion 'Lymph nodes no longer swollen'

They are called FuCoyDon & Eternity. One is a seaweed formulation & the other is a resveratrol, polyphenol, catechin (can't spell) & quercetin formula. Due to his results he has added a couple other liquid supplements too.

2 hours ago

Deedee replied to DEW's discussion 'Lymph nodes no longer swollen'

what exactly did he take? Looks like great results.

2 hours ago

Deedee added a discussion

Dr. Drake to begin clinical trial

I got this email today: Hello All: Dr. Wonder Drake wanted to know if I knew any patients with cutaneous sarcoidosis. She is starting a clinical trial next week and if you would like to participate in the study you can call her office which I hav…

2 hours ago

marietta brown left a comment for DEW

2 hours ago

DEW left a comment for mary

4 hours ago

DEW left a comment for Barb Revill

4 hours ago

Ruth replied to Roy Martin Smith's discussion 'Whats your occupation?'

I have been a teacher for 15 years.

6 hours ago

Rosanne left a comment for Andrew Ferguson

7 hours ago

Doris Bevis left a comment for lucy

10 hours ago

marietta brown replied to Jason Stokes's discussion 'De Classification of Sarcoidosis'

Thanks for that Andrew!

10 hours ago

DEW left a comment for Barb Revill

11 hours ago

DEW left a comment for June

11 hours ago

Jackie Lees replied to June's discussion 'Pronounced cured of sarcoid but still have symptoms?'

Hi no I do not have headaches with it, so I don't think I can help you with this one, sorry. I only use the Nasonex spray.

12 hours ago

carol replied to June's discussion 'Pronounced cured of sarcoid but still have symptoms?'

Does it give you continuous headaches? What do you do to ease it??? I even had sinus surgery and it did not help....

12 hours ago

Andrew Ferguson replied to Jason Stokes's discussion 'De Classification of Sarcoidosis'

Hi Marietta, The attachment to this Discussion is based on a September 2009 article in the BMJ, and may be what you are looking for: Sarcoidosis as viewed by the British Medical Association – Sarcoidosis as understood by the BMJ (LINK). Andrew Fer…

12 hours ago

Andrew Ferguson left a comment for Rosanne

13 hours ago

Andrew Ferguson left a comment for June

13 hours ago

Andrew Ferguson replied to June's discussion 'Is there anyone in Scotland who is on the Marshall Protocol?'

Hi June, To make someone a friend, click on their photo or icon, which will take you to their page. On the left side you will see the option "Add as a Friend". Click on that, then a dialog box is displayed. Click on "Add a personal message", and af…

13 hours ago

Members

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Welcome to the Sarcoidosis Network

This network is for patients, carers, practitioners and others to discuss Sarcoidosis. Everyone is invited to join and contribute. The aim is to provide a positive place where people can swap ideas and stories about Sarcoidosis, its consequences and treatment.

February's costs are sponsored by Beverley Monkhouse in memory of her dearly loved boyfriend Noel Smith who lost his battle 16th January . Thank you so much! Our thoughts are with you all.

If you'd be interested in sponsoring a month's £45 ($70) it costs, please message Martine. The money enables us to use google adwords to tell people with Sarcoidosis that there is a community here for them - a place they can get (and give) support.

Anyone entering the site must read the disclaimer, which is either at http://www.sila.org.uk/disclaimer.html or in the disclaimer group.