The Sarcoidosis Support Community

A free community focused on Sarcoidosis - its effects, and treatments. Led by Martine with management support from Keith, Deb and Denise.

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Fundamentals

Click here for an index of discussions.

List of Specialist's.

Events

London Meet-up (SILA)

December 3, 2009 from 7pm to 9pm – King's College Hospital
Norfolk Meet-up of Sarkie Friends

December 5, 2009 from 11:30am to 1:30pm – Reading Rooms
Sarky Curry Night!

December 14, 2009 from 7pm to 11pm – Bombay Lounge,Peatmoor Swindon

Latest Activity

MohanMenon, Dawn Marie Holling and Pamela Watson joined The Sarcoidosis Support Community

1 hour ago

Ricardo left a comment for Hanna Howard

1 hour ago

Ernest Wonderfull day filled with family, in spite of the pain.

2 hours ago

Ernest Today was a very good day, spent with my family. Inspite of the pain.

2 hours ago

Ernest left a comment for Hanna Howard

2 hours ago

Ernest left a comment for Ernest

2 hours ago

Dawn Marie Holling left a comment for Hanna Howard

2 hours ago

Dawn Marie Holling left a comment for Rosanne

2 hours ago

Dawn Marie Holling left a comment for Lesly Sanders

7 hours ago

Rebekah Woodcraft added a discussion

Erythema nodosum back - advice

Hi today have come up with red nodules around my ankles, knees, elbows and they are getting worse - will go to doctor tomorrow, its been 4 years since been diagnosed and have had 2 flare ups, anyone got any advice xxx What is it x

7 hours ago

marietta brown replied to Sarah's discussion 'Memory loss and confusion'

So sorry, Sarah, that you're experiencing one bad thing after another. My memory is so unreliable these days, my husband says I'll never be bored with his anecdotes because I can never be sure I've heard them before or not...lol. Don't know if it ...

12 hours ago

marietta brown replied to Adrienne Jean sanders's discussion 'help'

Hi Adrienne - I've written to you through the inbox system. Hope you are feeling better? Take care!

13 hours ago

Sarah replied to Sarah's discussion 'Memory loss and confusion'

Hi Ruth, The sarcoid affects my lungs, eyes, lymph nodes, skin and joints. It is a nightmare and is really knocking my confidence, I am a secondary school teacher, which means you have to be on the ball constantly - and I am terrified of going ba...

13 hours ago

Carol C left a comment for Martine Caitlan

14 hours ago

Carol C left a comment for cosmic-al

14 hours ago

Adrienne Jean sanders replied to Adrienne Jean sanders's discussion 'help'

Hi Mo, I read your words most days , they give me a lift and i thank you so much for them. I'm finding by the end of the day i'm not so stressed, it's just the days begining. I hope you are well, God Bless

22 hours ago

P Busch replied to Monty's discussion 'Stiff fingers and painful calfs/legs'

Yes I get the cramps in hands and painful calves. My calves feel hard and knotted...I really noticed this when I had a pedicure and they massage your legs, oh my gosh, it was very painful. I take magnisium every day, but I still get it...haven't n...

23 hours ago

Denise replied to Martine Caitlan's discussion 'BBC One - Pilot series DIAGNOSIS Needs you!!!!(UK)'

I haven't posted for a while but yes I have posted the last time I went to the specialist on it's on my page here. Thanks for your kind words. How are things going for you? I got a answer back from the show and they are only going to follow those ...

yesterday

Kaye Vann- Anderson updated their profile

yesterday

marietta brown replied to Martine Caitlan's discussion 'BBC One - Pilot series DIAGNOSIS Needs you!!!!(UK)'

Hi Denise - I'm absolutely thrilled for you that you're finally off oxygen. Hope you manage to stay that way. Are you still posting your diary? If so where do I find it?

yesterday

Members

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Sarah

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Welcome to the Sarcoidosis Network

This network is for patients, carers, practitioners and others to discuss Sarcoidosis. Everyone is invited to join and contribute. The aim is to provide a positive place where people can swap ideas and stories about Sarcoidosis, its consequences and treatment.

November's costs are sponsored by Andrew Ferguson. Thank you so much!

If you'd be interested in sponsoring a month's £45 ($70) it costs, please message Martine. The money enables us to use google adwords to tell people with Sarcoidosis that there is a community here for them - a place they can get (and give) support.

Anyone entering the site must read the disclaimer, which is either at http://www.sila.org.uk/disclaimer.html or in the disclaimer group.