The Sarcoidosis Support Community

A free community focused on Sarcoidosis - its effects, and treatments. Led by Martine with management support from Keith, Deb and Denise.

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Fundamentals

Click here for an index of discussions.

List of Specialist's.

Events

Merseyside Meet-up of Sarkie Friends

November 9, 2009 from 1pm to 3:30pm – Chaloner Hall, St. Austins
Yorkshire Meet-up of Sarkie Friends

November 10, 2009 from 5:30pm to 8pm – The Circle (meeting room 6)
ESSEX MEETUP - 28th November 09

November 28, 2009 from 3pm to 5pm – Basildon Essex
London Meet-up (SILA)

December 3, 2009 from 7pm to 9pm – King's College Hospital
Norfolk Meet-up of Sarkie Friends

December 5, 2009 from 11:30am to 1:30pm – Reading Rooms

Latest Activity

marietta brown replied to Rebekah Woodcraft's discussion 'Re occuring sarcoid'

Can't take cod liver oil or other fish oils when you have active sarc. because of the vit D complication. I take quercetin, astragalus, echinacea and vit C and massage a little vit E into my skin where there are "blemishes" from sarc. I also do re...

59 minutes ago

Sean and Rebekah Woodcraft joined The Sarcoidosis Support Community

3 hours ago

Rebekah Woodcraft replied to Rebekah Woodcraft's discussion 'Re occuring sarcoid'

Hiya thanks for the reply am mobile, just so fed up of aching and feeling so tired - i am back at docs tomorrow for bloods, i just find the docs dont seem to know too much about it and just feel im making it up - i live alone with my 4 year old an...

3 hours ago

marietta brown replied to Rebekah Woodcraft's discussion 'Re occuring sarcoid'

Hang on in there, Rekekah! It must be horrible to be hardly able to move and yes there are several people on this site with sarc which waxes and wanes so you are not alone there. The only advice I can offer is that if the joint pain is caused by i...

3 hours ago

Stephanie Kenning left a comment for kathryn dion-king

5 hours ago

Bryan Williams left a comment for Hanna Howard

5 hours ago

Rebekah Woodcraft added a discussion

Re occuring sarcoid

Hi i am a new member here. I became ill in 2006 with severe sarcoid which made me unable to move, i was hospitalized for a few weeks while they carried out numerous tests, it took them nearly 3 months to diagnose me with sarcoid, i was put on stri...

7 hours ago

Deedee left a comment for cherylm203

9 hours ago

Areatha replied to Lynne Harpole's discussion 'What should I expect?'

I was diagnosed in 2004, and have had at least 6 to 8 flare ups. you will find that Dr. Are learning about sarcs as they go along. This has been around for a long time, but not really "STUDIED" some info on here are true, but every one of us are ...

9 hours ago

Areatha replied to Tracy Eden Larby's discussion 'Sarcoid is only temporary?'

I agree with you Deedee, my only quetion is... SArcoidosis has secondary deseases too; after a long time with flare ups it is NOT always easy to tell the difference between sarc and the secondery deseases. How does your husband tell the difference?

10 hours ago

Areatha replied to Tracy Eden Larby's discussion 'Sarcoid is only temporary?'

You r sooo right Gene !!!

10 hours ago

Jane Carter replied to Sarah's discussion 'Kidney Stones?'

glad to hear you are feeling better today! hope it continues!

11 hours ago

barbara birtwistle gave a gift to Hanna Howard

Teddy Bear

From the Gift Store

11 hours ago

Sarah replied to Sarah's discussion 'Kidney Stones?'

Am feeling much better today - drank a gallon of water and had an early night. Looking up kidney stones on NHS direct found there really is not much they can do except relieve some of the pain, the painkillers they use are same ones I am taking an...

13 hours ago

Mo Carey replied to Sarah's discussion 'Kidney Stones?'

Think you should definitely get checked out Sarah. Hope all goes well.

16 hours ago

Jane Carter replied to Areatha's discussion 'Everyhing is HOT !'

I've never heard of this - sorry I can't help.

17 hours ago

Jane Carter replied to Sarah's discussion 'Kidney Stones?'

OOh - that sounds awful - If I was you, I'd go to A&E anyway - no matter how long the wait. (I can't stand being in any sort of pain!) How are you today? Hope it's stopped...Best wishes

17 hours ago

cherylm203 left a comment for Deedee

21 hours ago

Kristina Rice updated their profile

23 hours ago

Martine Caitlan replied to Sarah's discussion 'Kidney Stones?'

ive had pains that have doubled me over, hard to explain if its a spasm or cramp, but they can last for hours at a time and as soon as you move start again, does that sound like what your having?

yesterday

Members

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Welcome to the Sarcoidosis Network

This network is for patients, carers, practitioners and others to discuss Sarcoidosis. Everyone is invited to join and contribute. The aim is to provide a positive place where people can swap ideas and stories about Sarcoidosis, its consequences and treatment.

November's costs are sponsored by Andrew Ferguson. Thank you so much!

If you'd be interested in sponsoring a month's £45 ($70) it costs, please message Martine. The money enables us to use google adwords to tell people with Sarcoidosis that there is a community here for them - a place they can get (and give) support.

Anyone entering the site must read the disclaimer, which is either at http://www.sila.org.uk/disclaimer.html or in the disclaimer group.