Response of Petition 4 Replies

Started by Martine Caitlan. Last reply by Martine Caitlan 6 minutes ago.

i am starting to doubt myself, could i be making these symptoms up??? 10 Replies

i was diagnosed with sarcoid in may after months of severe muscle weakness, severe swelling of the face and feet etc as you will see on my page, its being a tough time and ive had to change consult...

Started by tracey stanley. Last reply by Jim Bolton 24 minutes ago.

Pathways to diagnosing sarcoidosis 4 Replies

Hi Everyone, After taking a look at an authoritative study titled “The Diagnostic Pathway to Sarcoidosis,” (LINK), I concluded that the paragraphs below are the most illuminating. The study compri...

Started by Andrew Ferguson. Last reply by Andrew Ferguson 1 day ago.

Vertigo 6 Replies

Today I suffered an attack of severe vertigo - the room appeared to spin and I had to hold onto a wall for support. I thought I was going to fall or possibly faint. The worst passed quite quickly b...

Started by June. Last reply by Jeff 1 day ago.

Swine flu should we be worried 8 Replies

With sarcoid sufferers immune system lower than the average joe public, does the new swine flu epidemic leave us with "cause for concern" and should we be seeking medical advice on any preventative...

Started by Mark Flude. Last reply by Melissa 1 day ago.

Tattoos 11 Replies

anyone out there have tatts? if so, are they raised and very very itchy? I have had mine for 8 years, and this is the first time they are raised and itchy and I am wondering if this is something wi...

Started by Dana. Last reply by Mel Jul 7.

chest tubes 2 Replies

as a matter of informing those who get a lung biopsy. i had one and consequently my right lung had collapsed. i endured a four day hospital stay in pain from the chest tube inserted to drain fluid ...

Started by jeffrey. Last reply by Billie Jul 7.

Feeling pain in left lung area and racing heart..... 5 Replies

Hello everyone, hope all are doing as well as one can. I haven't been on in a while and just wanted to ask if anyone might have any suggestions as to what might be occuring with me. I have had sarc...

Started by Billie. Last reply by Billie Jul 7.

Confused ... can anyone shed any light? 16 Replies

Hi I am quite new to this site and wondered if anyone could possibly find the time to read my message with the hope of shedding some any light as I am getting mixed messages from my doctors. Here i...

Started by Ruth. Last reply by jeffrey Jul 6.

Swelling up & up & up! 10 Replies

Ok alarm bells are ringing - I am more swollen than I was when pregnant, my ankles & knees are puffy and sore, my stomach is HUGE, arms are so taut that I cannot straighten them at the elbow, m...

Started by Sarah. Last reply by Sarah Jul 6.

London Marathon 35 Replies

Hi, I am a sufferer of Sarcoid and have been for nearly 4 years on the dreaded Pred. I used to run prior to be diagnosed and continue to do a bit. I am running or should I say walking the London m...

Started by JOHN. Last reply by Keith Jul 6.

Sarcoidosis Society 26 Replies

Hello to all I have for some time been thinking about setting up a sarcoidosis society with several aims. One as a patient support/info but also for health professionals to access info and to orga...

Started by Dr Howard Branley. Last reply by Keith Jul 6.

Sarcoidosis in the spleen and liver 2 Replies

Hi i am newly diagnosed with sarcoidosis i was told i had lymphoma. I have just had my spleen removed as was so enlarged and had Sarcoidosis all over it. My liver is also covered. My chest xray is ...

Started by Paula Hefford. Last reply by Deedee Jul 5.

Aniseed harmful to Sarcs? 3 Replies

I have recently been taking Aniseed flavour gaviscon for acid reflux. But ive noticed that my cramps have been getting alot worse, ie. permanantly throughout the day all over. Someone has mentione...

Started by Martine Caitlan. Last reply by Sarah Richardson Jul 5.

Free from Sarcoidosis? 28 Replies

Has anyone been free from all symptoms and medication for a time and then fallen ill again? I was diagnosed in 2004, had Sarcoid for a couple of years and gradually stopped the medication over 10 m...

Started by Lena. Last reply by Kim Jul 5.

Asians with Sarc 10 Replies

Hi everyone, I was just wondering if Asians can be affected with Sarcoidosis. I was diagnosed with Sarc last month but I looked in the internet and I read that Sarc patients are European and Africa...

Started by Julius. Last reply by Kim Jul 5.

Flare-up, how long do they last? 2 Replies

I was diagnosed in 2004 when I left hilar lump. No biopsy was performed but I had at that time classic arthritis symptoms in my knees. Swelling and soreness lasted at that time nearly a year. I've ...

Started by Bob Joneser. Last reply by Kim Jul 5.

Sarcoidosis and the dieing liver 10 Replies

Has anyone had a go with sarc on their liver? I was diagnosed with sarc 7 years ago on my liver and there hasn't been a doctor to gamble on weather prednisone will cure or kill me. But that seems t...

Started by Ernest. Last reply by Ernest Jul 4.

HAVING PAIN IN THE RIB AREA 11 Replies

IS ANYONE HAVING PAIN IN THE RIB AREA . IT HURT REALLY BAD WHEN I INHALE . I HAVE BEEN LIVING WITH SARCOID FOR 2 YEARS NOW .DON'T KNOW WHAT TO DO.

Started by Renee Smith. Last reply by Ernest Jul 4.

Foods Contraindicated for Sarcoidosis 1 Reply

When I was first diagnosed with Sarcoidosis I was advised by a herbalist to avoid oranges and orange juice as they are considered inflammatory agents. Apparently though this is not the same for oth...

Tagged: Orange, Food, Inflammation, Avoid

Started by Kim. Last reply by Deedee Jul 3.