The Sarcoidosis Support Community

A free community focused on Sarcoidosis - its effects, and treatments. Led by Martine with management support from Keith, Deb and Denise.

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Latest Activity

MohanMenon, Dawn Marie Holling and Pamela Watson joined The Sarcoidosis Support Community
1 hour ago
1 hour ago
Ernest Wonderfull day filled with family, in spite of the pain.
2 hours ago
Ernest Today was a very good day, spent with my family. Inspite of the pain.
2 hours ago
2 hours ago
Ernest left a comment for Ernest
2 hours ago
2 hours ago
2 hours ago
7 hours ago
Rebekah Woodcraft added a discussion
Hi today have come up with red nodules around my ankles, knees, elbows and they are getting worse - will go to doctor tomorrow, its been 4 years since been diagnosed and have had 2 flare ups, anyone got any advice xxx What is it x
7 hours ago
So sorry, Sarah, that you're experiencing one bad thing after another. My memory is so unreliable these days, my husband says I'll never be bored with his anecdotes because I can never be sure I've heard them before or not...lol. Don't know if it ...
12 hours ago
Hi Adrienne - I've written to you through the inbox system. Hope you are feeling better? Take care!
13 hours ago
Hi Ruth, The sarcoid affects my lungs, eyes, lymph nodes, skin and joints. It is a nightmare and is really knocking my confidence, I am a secondary school teacher, which means you have to be on the ball constantly - and I am terrified of going ba...
13 hours ago
14 hours ago
14 hours ago
Hi Mo, I read your words most days , they give me a lift and i thank you so much for them. I'm finding by the end of the day i'm not so stressed, it's just the days begining. I hope you are well, God Bless
22 hours ago
Yes I get the cramps in hands and painful calves. My calves feel hard and knotted...I really noticed this when I had a pedicure and they massage your legs, oh my gosh, it was very painful. I take magnisium every day, but I still get it...haven't n...
23 hours ago
I haven't posted for a while but yes I have posted the last time I went to the specialist on it's on my page here. Thanks for your kind words. How are things going for you? I got a answer back from the show and they are only going to follow those ...
yesterday
yesterday
Hi Denise - I'm absolutely thrilled for you that you're finally off oxygen. Hope you manage to stay that way. Are you still posting your diary? If so where do I find it?
yesterday
 

Welcome to the Sarcoidosis Network

This network is for patients, carers, practitioners and others to discuss Sarcoidosis. Everyone is invited to join and contribute. The aim is to provide a positive place where people can swap ideas and stories about Sarcoidosis, its consequences and treatment.

November's costs are sponsored by Andrew Ferguson. Thank you so much!

If you'd be interested in sponsoring a month's £45 ($70) it costs, please message Martine. The money enables us to use google adwords to tell people with Sarcoidosis that there is a community here for them - a place they can get (and give) support.

Anyone entering the site must read the disclaimer, which is either at http://www.sila.org.uk/disclaimer.html or in the disclaimer group.

Forum

Rebekah Woodcraft

Erythema nodosum back - advice

Started by Rebekah Woodcraft 7 hours ago.

Sarah

Memory loss and confusion 6 Replies

Started by Sarah. Last reply by marietta brown 12 hours ago.

Adrienne Jean sanders

help 12 Replies

Started by Adrienne Jean sanders. Last reply by marietta brown 13 hours ago.

Monty

Stiff fingers and painful calfs/legs 6 Replies

Started by Monty. Last reply by P Busch 23 hours ago.

Martine Caitlan

BBC One - Pilot series DIAGNOSIS Needs you!!!!(UK) 5 Replies

Started by Martine Caitlan. Last reply by Denise 1 day ago.

Andrew Ferguson

Trick or Treatment?: Alternative Medicine on Trial 5 Replies

Started by Andrew Ferguson. Last reply by marietta brown 1 day ago.

Liam

Parotid Gland Sarcoidosis or Lymphoma??? 8 Replies

Started by Liam. Last reply by marietta brown 1 day ago.

Lynnette Caple

methatrexate 3 Replies

Started by Lynnette Caple. Last reply by Jane Badon Nov 28.

Jane Carter

Walk for SILA 3 Replies

Started by Jane Carter. Last reply by Jane Carter Nov 27.

ian

advice please 7 Replies

Started by ian. Last reply by Andrew Ferguson Nov 27.

paul taylor

Weak Limbs 14 Replies

Started by paul taylor. Last reply by Pat Nov 26.

Sarah

Kidney Stones? 13 Replies

Started by Sarah. Last reply by Sarah Nov 26.

Andrew Ferguson

Sarcoidosis of the spine 4 Replies

Started by Andrew Ferguson. Last reply by Andrew Ferguson Nov 26.

Dr. Katherine

Numb hands or fingers 2 Replies

Started by Dr. Katherine. Last reply by Jason Stokes Nov 26.

Areatha

My Sarc Dr. Want me to see a Mero Dr. 2 Replies

Started by Areatha. Last reply by Areatha Nov 26.

simon chance

skin sarcoids 1 Reply

Started by simon chance. Last reply by marietta brown Nov 26.

Alison

Catch 22 4 Replies

Started by Alison. Last reply by Alison Nov 25.

P Busch

Does anyone get itching on face and head..

Started by P Busch Nov 25.

Sherm Sperstad

The roller coaster ride of prednisone 9 Replies

Started by Sherm Sperstad. Last reply by Sherm Sperstad Nov 25.

James O'Brien

Consultant Vs Patient 8 Replies

Started by James O'Brien. Last reply by James O'Brien Nov 24.

 
 

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